Voices for Change

March 2021 was Brain Tumour Awareness month. The Brain Tumour charity has been hit very hard by the impact of Covid-19, like all UK charities, and their funding stream has been decimated. This is terrible news for those of us desperate to change the outcome for families facing a brain tumour diagnosis.

The charity is pushing its #voicesforchange campaign ensuring that the issues that affect the brain tumour community remain a political priority. As part of that campaign and also to push the charity’s ground-breaking app BRIAN, Ben and I recorded a video explaining why we wish the app had been around during Silas’s treatment.

Always bittersweet to see his beautiful smiling face.

If you know anyone diagnosed with a brain tumour please encourage them to sign up for the BRIAN app. Even if they never use it for themselves, merely by signing up their medical history (anonymised) can play a part in changing the future for others.

A Piece of the Jigsaw Puzzle

I recently got the chance to speak at another conference. This time for the PM Society’s conference – “What does an informed patient mean for healthcare.” – at The Royal Society of Medicine in London. The conference combined a series of presentations and case studies from experts passionate about patient involvement in healthcare, highlighting how important it is to engage patients from the very beginning of the healthcare process and showing how collaboration with patients is key to improving healthcare outcomes. It is an important part of the jigsaw puzzle.

I was the keynote speaker and also took part in a panel discussion about how best to design information that meets patients’ needs.


Partnership with Shepherd Neame


Kent-based brewer and operator Shepherd Neame has named us as their inaugural Charity of the Year, as part of the relaunch of their Sheps Giving charitable arm of the business.

Shepherd Neame have already supported us at some of our other charity events and their team was instrumental in helping the Mighty Bar run smoothly at our summer festival but this partnership takes their support to a whole new level and we are excited to be able to work directly with members of their team to raise funds and awareness. Aside from the local connections, the company has lost two members of its own staff to brain tumours and several other employees have had family members affected.

Funds have already been raised via a charity golf day and the Faversham 10K run but there are lots more plans in the pipeline, including a Christmas Sale and a comedy night – something that would have been right up Silas’s street – so watch this space….

Test Match Special

If there is one thing Silas loved more than anything, it was cricket. He spent hours out in the garden in the summer with his younger brother playing out five day test matches. They would hold the score in their heads, know exactly who had scored how many runs, know how many overs each bowler had bowled and how many wickets they had taken in each innings. Amazingly enough, we never had a broken window.

In August, his father had the opportunity of chatting to Jonathan Agnew on the iconic Test Match Special. They talked about cancer, brain tumours, fund raising, cricket and A Mighty Boy.


A very special moment for all The Pullen Boys both big and small.

Ben also took the “behind-the-scenes” opportunity to bandana a number of England cricketers including Ian Botham for the site.


The Mighty Boy Festival

What a weekend!

The weather was kind to us in the run up to the festival and on the day itself. The bands all turned up on time (unlike the punters)  and performed their hearts out. So many great songs and wonderful voices belting out across the festival village – not to mention the sheer energy and madcap dancing later in the day.

The crowd lined up to learn the Haka – and thighs were red and faces flushed. Glitter filled the air and decorated faces and beards. James Heming (Heart FM) worked his magic compering in the heat, camera in hand. The Gin cocktails flowed at the Ginge Bar and pints were pulled at The Mighty Bar. Pizza, burgers, tacos and smoothies went down a treat and helped to soak up all the booze. Robots and fire jugglers entertained the crowd and the tunes banged out of the Sound Crumpet tent until late in the evening.

Auction frenzy took hold, the flames fed by the energetic David Selves, who lost his voice driving prices up.

A fantastic day and evening only made possible by the sheer hard work of a handful of volunteers and over £50,000 raised for the charity. People are already asking when we are going to do it again….!!!